Utilizing citizen science, this paper describes the evaluation protocol for the Join Us Move, Play (JUMP) programme, a whole-systems approach intended to increase physical activity among children and families, aged 5-14, in Bradford, UK.
In the JUMP program evaluation, we intend to understand the experiences of children and families and their relationship with physical activity. A collaborative and contributory citizen science approach underpins this study, including focus groups, parent-child dyad interviews, and participatory research activities. This study and the JUMP program will adapt based on the feedback and data received. We also seek to analyze participant perspectives on their citizen science involvement, and determine the suitability of a citizen science methodology for evaluating a whole-system approach. A framework approach, coupled with iterative analysis, will be used to analyze the data collected in the collaborative citizen science study, involving citizen scientists.
The University of Bradford has granted ethical approval for study one (E891, focus groups within the control trial, and E982, parent-child dyad interviews), and study two (E992). The findings, documented in peer-reviewed journals, will be complemented by participant summaries disseminated through schools or directly. To further disseminate information, the insights of citizen scientists will be employed.
As part of its ethical review process, the University of Bradford has approved study one (E891 focus groups, part of the control trial, and E982 parent-child dyad interviews) and study two (E992). Participants will receive summaries of the research findings, which will also be published in peer-reviewed journals; distribution can be via schools or direct delivery. Citizen scientists' contributions will be essential to creating additional avenues for information dissemination.
Examining empirical studies on family involvement in end-of-life communication to determine the crucial communication practices required for end-of-life decisions within family-oriented cultures.
The configuration for end-of-line communication settings.
The Preferred Reporting Items for Systematic Reviews and Meta-Analyses reporting criteria were applied thoroughly in this integrative review. Studies focusing on family communication at the end of life, published between January 1, 1991, and December 31, 2021, were extracted from four databases: PsycINFO, Embase, MEDLINE, and the Ovid nursing database, by using keywords encompassing 'end-of-life', 'communication', and 'family'. To enable analysis, the data were extracted and coded into thematic classifications. A quality assessment was conducted on all 53 included studies, arising from the search strategy. To evaluate quantitative studies, the Quality Assessment Tool was utilized, and the Joanna Briggs Institute Critical Appraisal Checklist was applied to qualitative research.
Evidence-based analysis of family-involved end-of-life communication strategies.
A review of these studies yielded four significant themes: (1) the occurrence of disagreements within families concerning decisions about end-of-life care, (2) the importance of carefully considering when to initiate end-of-life discussions, (3) the difficulty in selecting a primary decision-maker for end-of-life matters, and (4) differing cultural outlooks on communication during end-of-life situations.
A key finding of this review was the critical role of family in end-of-life communication, indicating that family engagement is likely to positively influence both the patient's quality of life and their final experience. Future research should produce a family-oriented communication blueprint, conceived for Chinese and East Asian environments, to address family expectations during the disclosure of a prognosis, helping patients fulfill their familial roles, and guiding end-of-life decision-making. Clinicians should understand how crucial the family is in end-of-life care and manage expectations with a sensitive awareness of cultural differences affecting family members.
A recent review of the literature highlighted the role of family in end-of-life interactions, showing a strong likelihood that family participation leads to improved quality of life and a more positive death experience for the patient. Future research should prioritize a family-focused communication model specific to Chinese and Eastern cultures. This model should be designed to address family expectations during prognosis disclosure, aid patients in their familial roles during end-of-life decision-making, and facilitate the fulfillment of those roles. biotic index For effective end-of-life care, clinicians must understand and address the significance of the family's role, customizing their approach to accommodate diverse cultural expectations.
Examining the patient experience of enhanced recovery after surgery (ERAS) and identifying problems with the practical application of ERAS from the patient's point of view are the goals of this research.
The Joanna Briggs Institute's methodology for synthesis guided the systematic review and qualitative analysis.
Pursuing relevant studies, four databases—Web of Science, PubMed, Ovid Embase, and the Cochrane Library—were systematically searched. The search was supplemented by contact with key authors and an examination of their references.
The ERAS program's studies, 31 in total, comprised 1069 surgical patients. To ascertain the extent of article retrieval, the inclusion and exclusion criteria were developed according to the Joanna Briggs Institute's guidelines for Population, Interest, Context, and Study Design. Inclusion criteria encompassed ERAS patients' experiences, qualitative English-language data published between January 1990 and August 2021.
Qualitative research data were collected from pertinent studies, employing the standardized data extraction tool from the Joanna Briggs Institute's Qualitative Assessment and Review Instrument.
The structural dimensions encompass patient concerns about the promptness of healthcare support, the professionalism of familial care, and uncertainty regarding the safety of ERAS protocols. In the process dimension, the themes identified were: (1) the need for accurate and sufficient information from healthcare professionals for patients; (2) the requirement for effective communication between patients and healthcare professionals; (3) the desire for personalized treatment plans by patients; and (4) the requirement for ongoing, continuous follow-up services for patients. buy Cediranib Patients' aspirations, regarding the outcome dimension, centered on the effective relief of severe postoperative symptoms.
A patient-centered evaluation of ERAS protocols can pinpoint shortcomings in clinical care, allowing prompt resolution of recovery process challenges and thereby minimizing obstacles to ERAS implementation.
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A concerning consequence of severe mental illness is the risk of premature frailty. The existing lack of intervention strategies that decrease the risk of frailty and minimize its adverse consequences is a serious concern for this population. New evidence is sought in this study on the practical application, acceptability, and preliminary effectiveness of Comprehensive Geriatric Assessment (CGA) in improving health outcomes for people with combined frailty and severe mental illness.
The CGA will be provided to twenty-five participants, experiencing frailty and severe mental illness, between the ages of 18 and 64, recruited from Metro South Addiction and Mental Health Service outpatient clinics. Primary outcome measures will focus on the practical application (feasibility) and patient acceptance (acceptability) of the embedded CGA within routine healthcare settings. Variables of significant interest are frailty status, quality of life, polypharmacy, and the broader context of mental and physical well-being.
All human subject/patient procedures received ethical clearance from the Metro South Human Research Ethics Committee (HREC/2022/QMS/82272). To disseminate the research findings, peer-reviewed publications and conference presentations will be utilized.
In accordance with the approval of the Metro South Human Research Ethics Committee (HREC/2022/QMS/82272), all procedures that involved human subjects/patients were deemed acceptable. Through peer-reviewed publications and presentations at conferences, study findings will be spread.
This study sought to develop and validate nomograms that accurately predict patient survival in the context of breast invasive micropapillary carcinoma (IMPC), which is essential for informed objective decision-making in patient care.
Nomograms were developed using Cox proportional hazards regression analysis to predict 3- and 5-year overall survival and breast cancer-specific survival, based on identified prognostic factors. Progestin-primed ovarian stimulation To assess the nomogram's performance, a multi-faceted approach was taken, encompassing Kaplan-Meier analysis, calibration curves, the area under the receiver operating characteristic curve (AUC), and the concordance index (C-index). Nomograms were benchmarked against the American Joint Committee on Cancer (AJCC) staging system, utilizing decision curve analysis (DCA), integrated discrimination improvement (IDI), and net reclassification improvement (NRI) as comparative tools.
The Surveillance, Epidemiology, and End Results (SEER) database served as the source for the collection of patient data. This database contains information about cancer occurrences, collected from 18 U.S. population-based cancer registries.
After rigorous exclusion of 1893 patients, the current study now incorporates 1340 individuals.
The OS nomogram's C-index (0.766) surpassed that of the AJCC8 stage (0.670). Furthermore, the OS nomograms exhibited greater AUCs than the AJCC8 stage (3 years: 0.839 vs. 0.735, 5 years: 0.787 vs. 0.658). The nomograms' clinical utility, as assessed by DCA, proved superior to that of the conventional prognostic tool, showing strong agreement between predicted and actual outcomes on calibration plots.